A note about MCAS

Why must my stomach stop digesting food randomly? Why does my body decide that every aspect of the world is my enemy?

A guessing game. Russian roulette of life.  This food was fine yesterday, but now when I eat it it will kill me? 

Trigger my throat to close and body to break out in hives and me to lose consciousness and have a seizure?

Last night's leftovers would make a good lunch, but today they caused my heart to race and fingernails to turn blue

Yesterday I spent the day outside, tomorrow the sun will cover my body in hives… even my own tears burn my face 

How can I prepare for something so unknown? Never knowing if I’ll be okay. Nothing is safe

My grandmother's body decided that her own saliva was the enemy, is that my fate?

-Giusiana

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When we aren’t healed..